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Keyword: definitions and concepts

What are the roles of carers in decision-making for amyotrophic lateral sclerosis multidisciplinary care? [Aus]

In this study, Hogden et al (2013), aimed to explore carer participation in decision-making, to identify carer roles, and determine the facilitators and barriers to carer participation in decision-making for amyotrophic lateral sclerosis (ALS) multidisciplinary care. Carers play a key role in promoting patient health literacy by sourcing, collating and providing ALS information to the patient. Hogden et al (2013) describe how carers sought ALS information, the difficulties of finding credible sources, the value of expert information and the barriers to decision-making created by carers’ reactions to Internet-based information on ALS. Hogen et al (2013) argue that in definitions of health literacy for decision-making the processes of assessing, synthesizing and filtering information needs to be emphasised.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3589077/

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The Health Literacy of America’s Adults: Results from the 2003 National Assessment of Adult Literacy

This document, published by the United States National Center for Education Statistics, is a report on the results of the 2003 National Assessment of Adult Literacy.

http://nces.ed.gov/pubs2006/2006483.pdf

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Literacy Harvest, Fall 2004: Health Literacy

This issue of Literacy Harvest focuses on health literacy. Dated Fall 2004, this magazine provides a useful historical context for health literacy with articles ranging from public policy priorities and cross-cultural communication, to the navigation of hospitals and research initiatives.

http://www.lacnyc.org/resources/publications/harvest/HarvestFall04.pdf

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Simply Put: A guide for creating easy-to-understand materials

Guide from the U.S. Department of Health and Human Services for creating health resources in understandable language.The guidance in Simply Put helps you transform complicated scientific and technical information into communication materials your audiences can relate to and understand. The guide provides practical ways to organize information and use language and visuals. This guide will be useful for creating fact sheets, FAQ’s, brochures, booklets, pamphlets, and other materials, including web content.

http://www.cdc.gov/healthcommunication/ToolsTemplates/Simply_Put_082010.pdf

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Medicines in My Home

Medicines in My Home is a multimedia educational program to teach consumers from adolescence through adulthood how to choose over-the-counter medicines and use them safely. The program is provided by the United States FDA.

http://www.fda.gov/Drugs/ResourcesForYou/Consumers/BuyingUsingMedicineSafely/UnderstandingOver-the-CounterMedicines/ucm092139.htm

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E-Book: Teaching Patients with Low Literacy Skills

This practical text guides the reader in developing the necessary tools for teaching those patients with limited literacy skills. Readers will learn proven strategies for evaluating comprehension and teaching patients using written materials, tapes, video, computer aided instruction, visuals, and graphics. An abundance of case studies helps to demonstrate the application of teaching/learning theory to actual practice. Readers will also explore literacy issues in health care as well as the cultural impact on comprehension.

http://www.hsph.harvard.edu/healthliteracy/resources/teaching-patients-with-low-literacy-skills/

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Clear Communication: An NIH Health Literacy Initiative

Information pertaining to the NIH Health Literacy Initiative "Clear Communication". Information and resources are provided under the following headings: health literacy, plain language, clear and simple, cultural competency, and talking to your doctor.

http://www.nih.gov/clearcommunication/index.htm

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Health Literacy: A Policy Challenge For Advancing High-Quality Health Care

Health literacy, at the intersection of health and education, involves more than reading ability. Studies of health literacy abilities show that many Americans with the greatest health care needs have the least ability to comprehend information required to navigate and function in the U.S. health care system. This paper defines health literacy as an important policy issue and offers strategies for creating a health-literate America.

http://www.sicklecelldisease.net/cbo/documents/v22n4s26.pdf

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Validation of Screening Questions for Limited Health Literacy in a Large VA Outpatient Population

Previous studies have shown that a single question may identify individuals with inadequate health literacy. We evaluated and compared the performance of 3 health literacy screening questions for detecting patients with inadequate or marginal health literacy in a large VA population. We conclude that a single question may be useful for detecting patients with inadequate health literacy in a VA population.

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2324160/

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Attributes of a Health Literate Organization

This paper describes 10 attributes of a health literate organization, that is, an organization that makes it easier for people to navigate, understand, and use information and services to take care of their health.

http://www.iom.edu/~/media/Files/Perspectives-Files/2012/Discussion-Papers/BPH_HLit_Attributes.pdf

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